Books, Websites & More

NFI Resources

Find These Resources on our Website

NIDCAP Pearls

The 10 Pearls of Wisdom are NIDCAP-based considerations are for parents with hospitalized babies in the intensive care nursery. They were developed to support parents and their babies to get to know one another and build close and trusting relationships.

Developmental Observer

Visit the Developmental Observer for stories from families, professionals, and our NIDCAP training centers. Some issues are dedicated to research abstracts.

Our Stories

Visit the “Our Stories” page of our website to read about families who have shared their experiences with having a premature and/or ill infant in a newborn intensive care setting.

Videos and Podcasts

Visit the Learning Center for videos, webinars, podcasts and readings.

NIDCAP Blog

The NIDCAP Blog includes stories from families, professionals and NIDCAP Training Centers.

NIDCAP Training Center Websites/Facebook Pages

Australia
www.schn.health.nsw.gov.au/professionals/learn/nidcap
www.facebook.com/NIDCAPAustralia

Portugal
www.facebook.com/nidcapporto.s.joao

The Netherlands
www.facebook.com/Sophia-Nidcap-Training-Centrum-294132274031829

France
www.facebook.com/nidcap.france

Sweden
www.facebook.com/nidcapkarolinska

Other Resources

Newsletters

Preemie Families: PreemieWorld newsletter — subscribe for free; Access Preemie Families newsletter archives here
Developmental Observer: Official newsletter of the NIDCAP Federation International, Inc.

Books

General Guidebooks for Parents

A Family Guidebook: Supporting Development of Newborns and Infants (2009) Joy V. Browne, Ayelet Talmi and Annie Immele, Early Intervention Colorado, www.eicolorado.org
Collaborative Consultation with Parents and Infants in the Perinatal Period (2012) Zack Boukydis
The Magic of Everyday Moments: How the Brain, Body and Mind Grows from Birth to 3 (2000) Claire Lerner with Amy Dombro and Karen Levine, ZERO TO THREE: National Center for Infants, Toddlers, and Families, www.zerotothree.org. (Note: Begin with free registration on the ZERO TO THREE web site to gain access to this series of pdf files in English or Spanish.)
Touchpoints: The Essential Reference: Your Child’s Emotional and Behavioral Development (1992) T. Berry Brazelton.
Touchpoints-Birth to Three (2006) T. Berry Brazelton & Joshua D. Sparrow
Your Baby Is Speaking To You (2011) Kevin Nugent

Premature Infants/Newborn Intensive Care

Treatment of Psychological Distress in Parents of Premature Infants: PTSD in the NICU (2021) Editors: Richard J. Shaw, MD and Sarah Horwitz, PhD
Early Arrival: Finding the Magic of Everyday Moments With Your Baby in the Neonatal Intensive Care Unit (2007) Rebecca Parlakian and Claire Lerner, ZERO TO THREE: National Center for Infants, Toddlers, and Families, www.zerotothree.org. (Note: Begin with free registration on the ZERO TO THREE web site to gain access to this pdf file.)
Caring for Your Baby in the Neonatal Unit (2014) Inga Warren & Cherry Bond
Intensive Parenting: Surviving the Emotional Journey Through the NICU (2013) Deborah Davis & Mara Tesler Stein
Kangaroo Babies: A Different Way of Mothering (2006) Nathalie Charpak
Newborn Intensive Care: What Every Parent Needs to Know, 3rd Edition (2009) Jeannette Zaichkin
Parenting Your Premature Baby and Child: The Emotional Journey (2004) Deborah L. Davis and Mara Tesler Stein.
Preemies: The Essential Guide for Parents of Premature Babies (2000) Dana Wechsler Linden, Emma Trenti Paroli and Mia Wechsler Doron
The Preemie Parents’ Companion: The Essential Guide to Caring for Your Premature Baby in the Hospital, at Home, and Through the First Years (2000) Susan L. Madden
Preemie Parents: Recovering from the Baby’s Premature Birth (2007) Lisa McDermott-Perez.
Special Delivery-What to Expect after the Birth of Your Preemie, Karen Gaskell
The Preemie Parents Survival Guide To the NICU (2009) Nicole Conn & Deb Discenza
The Preemie Primer: A Complete Guide for Parents of Premature Babies–from Birth through the Toddler Years and Beyond (2010) Jennifer Gunter
The Premature Baby Book: A Parent’s Guide to Coping and Caring in the First Years (1983) Helen Harrison & Ann Kositsky
The Premature Baby Book: Everything You Need to Know About Your Premature Baby From Birth to Age One (2004) William Sears, Robert Sears, James Sears and Martha Sears
Tu bebe prematuro / Your Premature Baby (2009) Victoria Dana
What to Do When Your Baby Is Premature: A Parent’s Handbook for Coping with High-Risk Pregnancy and Caring for the Preterm Infant (2000) Joseph A.Garcia-Prats and Sharon Simmons Hornfischer
Your Premature Baby (2012) Su Laurent & Maya Isaaks
Your Premature Baby and Child: Helpful Answers and Advice for Parents (1999) Amy E. Tracy and Dianne I. Maroney
Your Premature Baby: Everything You Need to Know about Childbirth, Treatment, and Parenting (1998) Frank P. Manginello and Theresa Foy DiGeronimo
Your Premature Baby: The First Five Years (2003) Nikki Bradford

Personal Books by Parents

A Mother’s Diary: How to Survive the Neonatal Intensive Care Unit (2005) Menetra D. Hathorn, Trafford Publishing, Canada
Alex: The Fathering of a Preemie (2004) Jeff Stimpson, Academy Chicago Publishers, Chicago.
From Hope to Joy: A Memoir of a Mother’s Determination and Her Micro Preemie’s Struggle to Beat the Odds (2013) Jennifer Degl
Jacob’s Journal: A Window into the NICU (2010) Kristine Repino, Grace Publishing, Farmington Hills, MI.
Living Miracles: Stories of Hope from Parents of Premature Babies (2000) Kimberly A. Powell and Kim Wilson, St. Martin’s Press, New York.
My Baby is a Superhero (2019) Stephanie Laskoskie, self-published.
Preemie Chronicles: Our NICU Experience (2006) Jeff Ewing, Lulu, U.S.A.
This Lovely Life (2009) Vicki Forman, Mariner Books, New York.

Children's

Believe in Katie Lynn (1995) by Bartholomew Resta, Eggman Publishing, Nashville.
Born Early: A Premature Baby’s Story (1998) by Lida Lafferty, Fairview Press, Minneapolis.
Evan Early (2006) by Rebecca Hougue Wojahn, Woodbine House, Bethesda, MD.
I was Small, But Now I am Tall (2020) by Jennifer Degl
The Littlest Sister (2008) by Leigh Schilling Edwards, Strategic Books Publishing, New York.
My Baby is a Superhero (2019) by Stephanie Laskoskie, self-published.
My Baby Sister Is a Preemie (2005) by Diana M. Amadeo, Zonderkidz, Grand Rapids, MI.
No Bigger Than My Teddy Bear (2004) by Valerie Pankow, Family Books, Petaluma, CA.
Waiting for Baby Joe (1990) by Pat Lowery Collins, Albert Whitman & Company, Park Ridge, IL.

Websites

General

American Academy of Pediatrics – Section on Perinatal Pediatrics: The AmericanAcademy of Pediatrics has a page dedicated to information for families.

Information on Premature Infants

Baby First: Parent’s Corner: This site provides educational resources and support to parents and caregivers of premature infants, including sections on life with your baby in and after the NICU, plus parent stories, as well as a glossary of NICU terms.
KidsHealth: A Primer on Preemies: This site on children’s health, behavior and development has a section that describes common health problems of premature infants and life after the NICU.
MedlinePlus: Premature Babies: A service of the U.S. National Library of Medicine and the National Institutes of Health, this site includes links to articles, web sites and other information—from the basics of preterm labor and the latest research to financial issues and information about different medical conditions.
- En español: Medline Plus: Bebé prematuro
Premature Baby — Premature Child: This site was started in 1996 by parents whose son was born at 26 weeks. Their goal is to support other parents by providing information, resources and a way for parents to connect. It also offers help for parents of school-age children and discusses long-term impacts of prematurity.
World Health Organization (WHO): This is a link to the WHO’s fact sheet on preterm birth which includes links to “Born too soon: the global action report on preterm birth“, and other useful information for families of preterm infants.
Centers for Disease Control and Prevention (CDC): The CDC’s Division of Reproductive Health provides on preterm birth in the US as well as general information on preterm birth from the signs of preterm labor to prevention.

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