Parent Advocacy & Network Organizations

Canadian Premature Babies Foundation

Canadian Premature Babies Foundation
This organization seeks to prevent preterm birth through education and research: supports the best standards of care for premature babies; and gives premature babies and their families a voice across Canada.

European Foundation for the Care of Newborn Infants (EFCNI)

European Foundation for the Care of Newborn Infants
The European Foundation for the Care of Newborn Infants (EFCNI) is a pan-European organization representing parents and scientific experts with the aim of improving the long-term care of preterm and newborn infants with illnesses and support for their families.

European Foundation for the Care of Newborn Infants
Hofmannstraße 7A
D-81379 Munich
Phone: +49 (0)89 / 89083260
Email: info@efcni.org
Facebook: www.facebook.com/efcni
Instagram: www.instagram.com/efcni
Website: www.efcni.org

EFCNI mit Untertitel 2010 cropped

March of Dimes

March of Dimes: Prematurity:
This nonprofit organization for pregnancy and baby health is dedicated to preventing birth defects, premature birth and infant mortality. The web site has sections tailored to NICU families, along with personal stories from families and a place to share your story with others.

NICU Parent Network (NPN)

NICU Parent Network (NPN)
The NPN represents US organizations that provide support to parents of preemies. Each of its member organizations are run by parents of preemies and provide resources, support and information for families of premature infants. See the “Meet our Members” page for a listing of many parent organizations across the United States.

NICU Parent Network
Email: connect@nicuparentnetwork.org
Facebook: www.facebook.com/NICUParentNetwork/
Twitter: @NICUParentNet
Instagram: instagram.com/nicuparentnetwork
Website: www.nicuparentnetwork.org


PreemieWorld was created to help bridge the gap between parent and professional in the NICU, at home and beyond. With books, videos, and other products and tools, the hope is to make everyone’s life just a little bit easier as the “new normal” is created in the life of the preemie and his/her family.

Zero to Three

This national nonprofit promotes the health and development of infants and toddlers by informing, training and supporting parents, professionals and policymakers. (Note: Complete the free registration to get full access to the site’s online resources.)

Family Organizations by Geographical Location



Life’s Little Treasures Foundation
1/21 Eugene Terrace.
Ringwood, VIC 3134 Australia
Facebook: www.facebook.com/lifeslittletreasuresfoundation
Instagram: www.instagram.com/lltfoz/
YouTube: www.youtube.com/channel/UCQhRIl6DnE4bPCR_NPD_m0w
Website: www.lifeslittletreasures.org.au



Denmark Family Org logo taken fr web copy Landsforeningen Præmatures Vilkår
Porcelænshaven 26, 2.sal
2000 Frederiksberg
Phone: 30 49 59 04
Email: kontakt@praematuresvilkar.dk
Facebook: www.facebook.com/DeMindste
YouTube: www.youtube.com/user/praematur
Website: www.praematuresvilkar.dk


EFCNI mit Untertitel 2010 cropped European Foundation for the Care of Newborn Infants
Hofmannstraße 7A
81379 Munich
Phone: +49 (0)89 / 89083260
Email: info@efcni.org
Facebook: www.facebook.com/efcni
Website: www.efcni.org
Fruhgeborene Bundesverband “Das frühgeborene Kind” e.V.
Speyerer Str. 5-7
60327 Frankfurt am Main
Phone: +49 (0)69 58 700 990
Email: info@fruehgeborene.de
Facebook: www.facebook.com/fruehgeborene
YouTube: www.youtube.com/user/fruehgeborene1
Website: www.fruehgeborene.de


Hlitominon_logo_ENG ILITOMINON
16, Ioannou Gennadiou
Athens 11521, Greece
Phone: +30 210 7299992
Email: info@ilitominon.gr
Facebook: www.facebook.com/Ilitominon
Website: www.ilitominon.gr
FNICU Cyprus Friends of Neonatal Intensive Care Unit
Association-Cyprus (FNICU)

P.O Box 23988
1687, Nicosia Cyprus
Phone: +357 22 260 800
Email: info@fnicu-cyprus.com
Facebook: FNICU Facebook Page


Melletted a helyem Egyesület
Csorsz u.41.
1124-Budapest, Hungary
Contact: Livia Nagy Bonnard
Email: info@mellettedahelyem.hu
Facebook: www.facebook.com/mellettedahelyem
Instagram: www.instagram.com/mellettedahelyem/?hl=en
Twitter: @AHelyem
Youtube: www.youtube.com/channel/UCF3Pzb0gOG5kZl2C-t6RCMA
Website: www.mellettedahelyem.hu/


Lateral EPS Logo Irish Neonatal Health Alliance Irish Neonatal Health Alliance
26 Oak Glen View
Southern Cross
Bray, Co Wicklow, Ireland
Phone: +353 85 1920602
Email: info@inha.ie
Facebook: www.facebook.com/pages/Irish-Neonatal-Health-Alliance/
Twitter: @IrishNeonatal
Pinterest: www.pinterest.com/ineonatal/
LinkedIn: Irish Neonatal Health Alliance
Website: www.inha.ie


Logo Vivere2015 sm VIVERE ONLUSCoordinamento Nazionale delle Associazioni per la Neonatologia
Contact: Monica Ceccatelli Collini
Phone: 333/4037122
Email: monica@piccinopiccio.it
Facebook: www.facebook.com/vivere.onlus
Website: www.vivereonlus.com


nna_logo Lithuania taken from website copy Lithuanian Premature Baby Association NEIŠNEŠIOTUKAS
Contact: Asta Speicyte Radzeviciene
Email: info@neisnesiotukas.lt
Facebook: www.facebook.com/neisnesiotukas
Instagram: www.instagram.com/neisnesiotukas/
Youtube: www.youtube.com/channel/UCYcXNrOJoBQpo83Wjz6KqEA
Website: www.neisnesiotukas.lt


Poland Logo modified SK Fundacja Wczesniak Rodzice – Rodzicom
ul. Sarmacka 12/2
02-972 Warsaw, Poland
Contact: dr Magdalena Sadecka-Makaruk,
Secretary General
Email: wczesniak@wczesniak.pl
Facebook: www.facebook.com/wczesniak
Website: www.wczesniak.pl


Portugal logo II Associação Portuguesa de Apoio ao Bebé Prematuro
Rua Viriato, S. Sebastião da Pedreira
1069-009 Lisbon
Phone: +351 934 741 145
Email: geral@xxs-prematuros.com
Facebook: www.facebook.com/xxs.prematuros
Website: www.xxs-prematuros.com
Logo_Cores 2 Nascer Prematuro,
Portuguese Premature Babies’ Parents Association
Contacts: Elsa Silva and Adriana Guerreiro, Co-founders
Águas Frias, s/n
8100-010 Alte
Phone: 00351910700006
Email: nascerprematuro@gmail.com
Facebook: www.facebook.com/nascerprematuro
Website: www.nascer-prematuro.pt


logo Svenska Prematurförbundet (National)
Email: kansliet@prematurforbundet.se
Facebook: facebook.com/Prematurforbundet
Twitter: @premforbundet
Youtube: www.youtube.com/user/SvPrematurforbundet
Website: prematurforbundet.se
mirakel_logo_bla_vit_vert Prematurföreningen Mirakel
Kaggeledsgatan 38 D
416 74 Gothenburg
Contact: Pernilla Brown
Email: pernilla.brown@prematurmirakel.se
Facebook: www.facebook.com/PrematurMirakel
Twitter: twitter.com/Prematurmirakel
Youtube: www.youtube.com/user/PrematurMirakel
Instagram: i.instagram.com/prematurforeningen_mirakel
LinkedIn: Prematurföreningen Mirakel
Website: www.prematurmirakel.se


Early Birds Preemie Parent Association
Асоціація батьків передчасно
народжених дітей –
Ранні Пташки
Saksagansky street, 29, apt 3
Kyiv 01033 Ukraine
Contact: Oleksandra Balyasna
Email: ranniptashky@gmail.com
Facebook: www.facebook.com/ranniptashky
Instagram: www.instagram.com/ranni_ptashky/
Youtube: www.youtube.com/channel/UCAy1T5RnzkCYh5qyWftfB5g
Website: www.ranniptashky.com


Middle East


Lavah – For The Premature Babies In Israel
Contact: Romi Shchori
Email: romi@pagim.net
Facebook: www.facebook.com/
Instagram: www.instagram.com/amutat_lahav/
YouTube: www.youtube.com/watch?v=cTTIqbOScCY&t=42s
Website: www.pagim.net

North America



elishope_logo_web BEST copy IV Eli’s Hope
2513 White Oak Drive
Hoffman Estates, IL 60195
Contact: Jessica Guthrie, Executive Director
Email: mail@elishope.org
Facebook: www.facebook.com/elishope
Twitter: @ElisHope
Website: www.elishope.org


Print Holding Tiny Hands
2513 White Oak Drive
Ames, IA 50014
Facebook: www.facebook.com/Holding-Tiny-Hands-Foundation
Blog: www.holdingtinyhands.com/blog
Website: www.holdingtinyhands.com


Hope for HIE image Hope for HIE
PO Box 250472
West Bloomfield Township, MI 48325
Contact: info@hopeforhie.org
Facebook: facebook.com/hopeforhie
Instagram: instagram.com/hopeforhie
Website: www.hopeforhie.org


GsF-Logo-gif-58kb Grahams Graham’s Foundation
103 N. River Rd.
Waterville, OH 43566
Facebook: www.facebook.com/GrahamsFoundation
Twitter: twitter.com/grahamsfound
Youtube: www.youtube.com/user/GrahamsFoundation
Website: grahamsfoundation.org



Canadian Premature Babies Foundation logo Canadian Premature Babies Foundation
Sherwood Park, Alberta
Phone: 780-718-0342
Email: info@cpbf-fbpc.org
Facebook: www.facebook.com/Canadian-Premature-Babies-Foundation
Website: cpbf-fbpc.org



Con Amor Venceras Image CON AMOR VENCERAS
Mariano Escobedo 362-4,
Col. Anzures, C.P. 11590, MEXICO DF
Phone: +52(55)26242487
Email: cav@conamorvenceras.org
Facebook: Con-Amor-Venceras
Twitter: twitter.com/conamorvenceras
Blog: conamorvenceras.blogspot.mx
Website: www.conamorvenceras.org

South America


LogoPrematuridadeCom Associação Brasileira de Pais de
Bebês Prematuros
Brazilian Parents of Preemies Association

Phone: +55 519 8118 2088
Contact: Denise Suguitani, Executive Director
Facebook: www.facebook.com/Prematuridade
Twitter: @_prematuridade
Website: www.prematuridade.com